07.08.2015 EAEAPROJECTS

Exposé reveals patient’s role in the society

EAEA GRUNDTVIG AWARD 2015. Exposé is a hybrid theatre performance of public speaking and contemporary dance. It exposes the ongoing problems behind status of patients with Primary Immunodeficiency (PID) and other rare diseases within the local health care system in Serbia.

The article series spreads good practices by introducing the nominees of the EAEA Grundtvig Award 2015.

Exposé competed in the International Category of the EAEA Grundtvig Award 2015. The project addresses variety of aspects that determine life with primary immunodeficiency: personal determinations of having such health condition; private experiences with PID from everyday life; family support; visibility and understanding of PID within society; relation between the state regulations and the patient; relation between hospitals/doctors and the patient; and the representation and visibility of PID in media.


Turning private into public

The main goal of Exposé was to use a hybrid artistic form of mixed practices of dance and public speaking as a medium for expanding the visibility and the public knowledge on PID and other rare diseases, and their socio-political status in local society.

Through its choreographic approach Exposé sought to avoid and reduce the pathos connected to the disease. The aim was to expose a process of negotiation between the identities of author as being simultaneously a patient with primary immunodeficiency and an artist that exposes the artistic work about primary immunodeficiency.

The intention was to let the spectator reconsider on how people are mutually communicating in public about their own basic needs, turning them into social issues instead of private.

Exposé project

Project coordinator:
POSPID (SPwPID) – Support for Patients with Primary Immunodeficiency, Igor Koruga

Partners:

  • National organisation for rare deseases in Serbia – NORBS (Belgrade)
  • Ministry of culture Republic of Serbia, Station – service for contemporary dance (Belgrade)
  • Bitef Theatre (Blegrade)
  • "Off frame" socially engaged theatre festival (Belgrade)
  • Cultural Centre Belgrade – Podroom gallery (Belgrade)

Resources:
Project website

Every year, EAEA hands out the EAEA Grundtvig Award to successful projects in adult education. In 2015, three projects were awarded with a prize: an international, a European and a national initiative. The theme of this year’s award was Adult Education and Health.